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Monday, August 20, 2012

One Big Heart

When Riley was 3 months old she was diagnosed with Dialated Cardiomyopathy. My little girl has an enlarged heart. I can still see the Texas Children's ER doctor's face when she said "her heart is so big we can't see her lungs." Since that horrible night I have looked at many, many ECHOs of that big heart.

From the long list, Its probably the diagnosis that describes her best. Because her personality is ALL heart. Her heart, and the emotions that flow from it are all enlarged. Just like her anatomical one. She laughs harder, smiles bigger and loves deeper. It's a real gift and a blessing to all of us who are lucky enough to laugh along with her and love her back!





But she doesn't just smile and laugh bigger. Where as smiling is something she does almost all day, she also can be very sensitive and sympathetic. When she sees sad things on TV or particularly when she hears sad music, my sweet girl pops out that lower lip and often bursts into tears.





It's horrible to actually admit but we all love this darling pouty face so much that we have been known to try and get it to make an appearance occasionally. Recently she really showed her sensitive side at a Speech Therapy appointment with Miss Christina. Apparently the dramatic music on the princess iPad game was overwhelming.





Riley's enlarged heart has caused some terrifying times in her short life. That condition has resulted in too many hospital stays, doctor visits, tests and medications. But that big heart makes her who she is. It gives her a rare capacity to feel her emotions in a spectacular way. A way that is admirable and wonderful to get to watch each day.

The number one question I get about my smiley Riley is "is she always so happy?" And my answer is always a resounding "yes!" And it's all because my Riley has one big heart!

- Posted using BlogPress from my iPhone

2 comments:

  1. Emily, she is a gift from God, one of His rarest gems, as is her mother. Such s sweet post.

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  2. i want to eat her up! i love that smile! and that is one cute pouty face :) love her and love YOU :)

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